-
Its been a long time, folks. Update.
Well, she still has “britty” on her bed. She tried a few posts on the Letterheads but couldn’t continue as the computer screen mitigates debilitating migraines.
We finally, after 14 years, got a true diagnosis of Rosemary’s problem. Its called Maxillofacial Osteonecrosis. Besides the damage to the trigeminal nerve, the bone itself sustained a trauma and began duing from the inside out. The marrow goes first, then the bone itself.
The surgery is rather invasive, requiring separating cheek from the gums, scraping the marrow and damaged bone away, removing bone from her hip to make the graft and manufacturing a plastic prosthesis to support the jaw during the healing process.
There are only 9 Doctors in the US who do this procedure. The waiting lists are long. We did send her to Alsace to await an appointment in Bern for this procedure and had a lot of our hopes hinging on that happening. Alas, the Swiss clinic determined she’s a borderline hemophiliac and declined to do the procedure, so we brought her home.
Rosemary is now on a 10 month waiting list for the clinic in West Virginia.
I’ve not been on the net much at all either. Lyn and I are dealing with these medical crisis’ and working, leaving time for little else.
She’s not forgotten you folks. I have kept her from the computer as the resultant migraines from looking at the screen and typing can last for days or even weeks.
She’ll be back one day. We miss her in the studio too. Take care, you guys. I’ll let you know if anything changes for the positive.Pierre
k31
-
4 Replies
-
Hi Pierre
There have been a lot of new members to the board including me so I didn’t have the pleasure of chatting to ya’ll.
I do hope everything goes well with Rosemary. It must be a very trying time for you all.
Keep us all posted won’t you
Regards
John
-
our thoughts and prayers remain with you all Pierre… 🙂
thank you for the news.
more soon
mikethesign
-
Thanks for the Update Pierre, As with everyone else here on the board our thoughts are continually with you and we all hope and pray that your troubles will soon come to an end. It’s a hard and no doubt very tiring time for you and your family but you have the support of all those around you. I’m sure i speak for the others in that if there is anything any of us can do to help – Just ask.
Please give my best wishes to Roesmary and tell her that were all thinking of her.
-
Thanks for letting us all know how things are Pierre I was very very involved last year and it had a very pronounced effect on my thoughts making my problems almost insignificant in comparison to those of Rosemary,yourself and all her family. The trauma you are suffering can only bring you closer together we are all with you in spirit please give her a great big kiss from me when she is well again there is a holiday home here in the UK with us for as long as she wants.God bless you all
Steve
Log in to reply.
